'We are stuck': Danielle, 9, and her family have been left housebound

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Families like Danielle's are burnt out and desperate.

Nine-year-old Danielle loves playing at the park, but she needs a bit of help to get there.

With level three autism, ADHD and an intellectual disability, she and her family have relied on a support worker to make outings safe.

"Every time [she goes], she's having fun, she comes back happy," dad Moses Olufokunbi said to The Canberra Times.

But the community participation funding that makes this possible is being cut under changes to the National Disability Insurance Scheme (NDIS), which the Albanese government legislated this year.

"They cut all of that ... We are left stranded," Mr Olufokunbi said. "We are stuck."

Having struggled for years on their own before finally getting NDIS support, he said the family desperately needs more funding - not less.

The family is among thousands in Canberra caring for children with disabilities, who have been asked to make do with less support.

Social and community participation funding has been slashed after its annual cost tripled to more than $12 billion.

The ACT government is still consulting on new foundational supports, as states and territories continue talks with the Commonwealth over the next stage of changes.

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